Excerpt from: The
Best Medicine By Mike Magee,
MD and Michael D'Antonio Well-Trained
Friends

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Left
to Right, John Stehlin, M.D., 75 and Peter de Ipolyi,
M.D., 53, cancer surgeons, Houston, Texas, Lin Mills,
49, interior designer,
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Lin Mills, Patient
Lin Mills was treated at the Stehlin clinic for breast
cancer. She underwent a single mastectomy and reconstructive
surgery. Her primary doctor at the clinic is John Stehlin.
"My cancer was discovered in a routine
mammogram. My doctor sent me to the oncologist that he thought
was best. I remember when I went in there I was hoping for
the best. The doctor said that the only possible treatment
was a radical mastectomy, and no reconstructive surgery, would
be possible.
I was in a state of shock, vulnerable, and
upset. I had a lot of questions, but he didn't seem to want
to answer them fully. He kept pressing me to make decisions
about treatment before I felt like I had all the information.
I left that doctor and went to five others,
looking for someone who I could communicate with. They all
offered sympathy but did nothing to assuage my fear. Instead
they focused on the cancer and killing it. I left their offices
feeling more afraid. I kept thinking about this friend of
mine who wound up having a double mastectomy, and when it
was all over her doctor was offended by her lack of gratitude.
"I waited a long time, at least an
hour, past my appointment time the first time I saw Dr. Stehlin.
But I didn't know that during that time he was looking at
my, charts, meeting with a radiologist and a surgeon and going
over everything. When we met, the first thing he said was,
'Sweetheart, I'm not worried about you. You are going to live
a long life.'
"All of a sudden I realized that I
had become clinically detached from what was happening to
me and how serious it all was. He invited a whole team of
people -- I think there were seven of us -- to go over my
records for an hour. I suggested the idea of reconstruction,
and he said, 'I think that's a wonderful idea.'
"The whole approach made me feel like
I was part of a big team that was going to do everything possible
for me. But they also treated me like I was a client, a valued
person, and that I had the ultimate authority in every decision.
It made me feel wonderful. Dr. Cohen, my surgeon, pledged
to me that he would do his very best work.
"Immediately before my surgery Dr.
Stehlin came to see me. I had told him that I didn't want
Valium before the surgery because I wanted a clear mind. I
said I would use meditation to relax instead. When he came
in he gave me a big hug and said how proud he was of me and
my relaxed heart rate. Then when I got into the operating
room I looked around and saw all these faces of familiar people.
They were the people I had picked to be there. It was like
they were friends there to help me, and they did."
"All of a sudden I realized that I had become clinically
detached from what was happening to me and how serious it
all was."
Mary Epperson, Patient
Ipolyi. Stricken by breast cancer in her mid-twenties, she
was determined to learn every option available to her. She
sought and found a doctor who would help her obtain a full
cure that also left her body and her life as whole as possible.
I had just gone through a change in insurance companies when
I discovered the lump myself. I had to rush over to see a
doctor I had never met before. I wanted to know if it was
cancer and if it was, what we were going to do. He just took
out this list and began going through the names of oncologists.
He gave me the name of a doctor, but when I called they said
I would have to wait six weeks for an appointment.
I had worked as a massage therapist before,
and I had some clients who had been through breast cancer.
I did not want to wait and wonder for weeks about what was
going to happen to me. I'm not that kind of person. I read
up on things, I'm very interested in medicine. I take action.
I had heard about Dr. Stehlin and Dr.de
Ipolyi so I made an appointment. But when I got there, my
insurance company hadn't yet approved payment. So I got on
the phone with them right there. I could see Dr. D. waiting
in the hallway for me. I could hear him tell the staff, 'Just
send her back here. I want to see her. I don't care about
the insurance. We'll work that out later. Send her back.'
"That impressed me. But what impressed
me even more was that he and I immediately began working together
on this. I said I wanted a needle biopsy. He said, 'When do
you want it?' I said I wanted it right away, and he said he
would schedule it for that afternoon. That told me that he
knew what I was going through. He understood and he cared.
"Hearing him say that he didn't care
about the insurance and that he just wanted to see me was
very important, but something happened as I was leaving the
appointment that made an even bigger impression. He followed
me out and into the hallway and we stopped for a minute to
talk about how to handle the insurance problem. I leaned back
against the wall with my hands behind my back and put a foot
up behind me, against the wall. He leaned against the wall
the same way, even putting the same foot up and putting his
hands behind his back too.
"What he did was unconscious. It's
called mirroring. And it shows someone has real empathy for
you. I've read that 85 percent of communication is body language
and I believe it. By his body language he was letting me know
that he saw me completely as a person. He was interested in
me as a person, not just a disease."
Doctor
John Stehlin authored one of the first articles on
psychology and cancer care ever published in a major medical
journal. In the thirty years since, Stehlin has continued
to explore the doctor-patient relationship. He has paid close
attention to the doctor side of the equation, focusing on
the effect that a physician's expectations and motivations
have on patients. Stehlin says an unusual opportunity -- a
grant that funded psychotherapy for him when he was a young
doctor -- began his lifelong interest in the psychology of
medicine. Thin and a bit stooped with age, Stehlin speaks
slowly, choosing his words with care.
Once a protégé of Dr. Stehlin,
Peter de Ipolyi, M.D, is now his partner in a busy oncology
practice and research center affiliated with St. Joseph's
Medical Center in downtown Houston. Dr.de Ipolyi helped pioneer
several cancer treatments. His surgical training included
work with Houston heart surgeons Michael DeBakey and Denton
Cooley. Tall and muscular, de Ipolyi communicates his energy
and enthusiasm through a broad, beaming smile.
Stehlin
"I think it's very important to recognize that doctors
expect certain rewards, satisfactions, from their relationships
with patients. You want an emotional reimbursement. That's
not bad. It's just real, a part of the relationship that should
be recognized.
"Probably the best specialty for this
is obstetrics. You get to build a close relationship with
your patients over six to nine months. Then on the night that
the baby is born you rush to the hospital, and then you can
say to the mother, 'Here's your baby!' It's wonderful.
"In oncology you pour all of your time
and energy -- emotional and physical -- into curing your patients.
When you finish the operation you feel so good. The patient
goes home thinking I'm God almighty. That feeling remains
until she gets a recurrence. Then I'm negated. My omnipotence
fails. Now what do I do? I realized that what I have to do
is set different goals. Be something different that the omnipotent
surgeon.
"What I am, really, is a trained friend
for my patients. I'm someone who is going to help see them
through this time. That's a very important thing. It means
building a true relationship so the patient knows you as a
person. I tell them right away that I don't have any magic.
I am human, just like you. I make mistakes, too. But I do
care about you. When a beautiful young person comes in and
you discover the cancer and you know what their chances are,
they have to know that you are pained too. Don't be afraid
to show them your pain, because you care about them."
"What I am, really, is a trained
friend for my patients. I'm someone who is going to help them
through this time."
de Ipolyi
"This is something John and I talk about a great
deal -- The Trained Friend. I first heard about it twenty-five
years ago. John told patients then that he couldn't treat
them alone. The patient has to be a partner. He has to carry
his load. The patient is not an object of the treatment, she
is a participant. When a new patient comes in we formally
welcome them to our team. The team is dedicated to your care,
but you are an important part of the team and we make sure
they know it."
Stehlin
"Doctors have to understand that they will have a tendency
to turn patients into objects, especially if things are not
going so well. I have done this myself. I'll have ten patients
in the hospital that I am going to see on rounds. Those that
you know are doing well you can hardly wait to see. Those
who are not, you put off. I once went to see my patients and
then went to have a sandwich, and in the middle of eating
realized that I had forgotten to see one of them. Of course
she was the one who was not doing so well. I had converted
her into an object, a problem, and subconsciously just decided
to forget her.
"To fight against this I try to make
sure that I really know patients as people. I insist on it.
If I can't establish that with someone, I really can't work
with them. I remember this one patient, Michael, who flew
in from Sacramento to see me. He always came with his wife.
But he was one of those patients who seemed down all the time.
He would come in and be all slumped over, very unresponsive,
very uninvolved. He wouldn't even look me in the eye. I said,
'I can't relate to you Michael, if you don't look at me. You
have to be alive. You have to carry on.'
"Michael decided to go to another doctor,
and that's alright. But in other cases that approach has really
worked. There was this one woman, Peggy, who was in the hospital
and doing quite poorly. Usually she was very upbeat. She had
a wig, because here hair had fallen out, and she always dressed
in a nice night gown and wore here makeup."Anyway, one
day I went in and she had had a bad night. She was very disheveled.
No makeup. Her hair piece was half on. She wasn't dressed
nicely. She looked like she didn't care. Well, I told here,
'I can't work with this crap. Look at you. I won't have you
giving up.' And I walked out.
"A little while later the nurses came
to me and said, 'Peggy wants to see you.' I went back in and
she was changed. Her hair piece was on straight, she had here
makeup on and she had changed here clothes. She looked me
right in the eye and said, 'Fuck you, John Stehlin.' I stepped
back and applauded her."
de Ipolyi
"John is talking about being honest, as a person,
in your relationship with a patient. It means sharing how
you feel about something, along with the facts. Of course,
how you share the facts is important, too. Patients must be
told the truth, but you have to consider the tempo at which
you deliver the truth.
"For example, after surgery a lot of
patients don't even ask what you took out of them. It may
seem strange, but it happens fairly often. In those cases
you slow down. You give them the information as they ask for
it. They will ask.
"The most important thing is to not
hide behind the medicine and technology. I saw a patient here
this morning who had had a questionable mammogram. I had treated
her sister for breast cancer ten years ago. Now she had it.
I had to go in and tell here we got a bad report back on her
tests. She started crying and I have to say I started crying
too. She's only thirty-six years old. She shouldn't have to
deal with that. It's awful, and I just had a human response
to it. It's not a problem. In fact, I find patients respect
an honest reaction to their situation."
Stehlin
"It's important to understand
that nothing creates more anger, for the doctor and the patient,
than cancer. This is why solid tumor chemotherapists probably
are the worst at relating to their patients. Their job is
so frustrating; there are so many recurrences, and they often
keep their feelings of anger and frustration inside. They
are mad as hell, and they don't know what to do with their
feelings. It costs the doctor a lot, emotionally, to do this
kind of work. You can't do it at all if you don't recognize
that.
Reprinted from The
Best Medicine, St. Martins Press, 1999.
Photo of Jamie Van Roen, M.D. and Dan Thomas. Permission granted
by William Vazquez Photography. |