Excerpt from: The
Best Medicine By Mike Magee,
MD and Michael D'Antonio The
Pioneer
Patient
Linda Richardson was just thirty-six years old when
she began to suffer from recurrent bladder infections. Initial
exams showed nothing unusual. A year later, her symptoms worsening,
she learned she had bladder cancer. Partial removal of her bladder
followed by chemotherapy were not enough. When the cancer recurred,
she began looking for a pioneer in urological surgery. That
was when she found Dr. Bennett. "I
had been pretty healthy all my life. I had taken care of myself,
gone to the doctor for checkups, and I had never had a major
illness. I thought I was on top of things. But I now know
I was a little naive. I really didn't know how to work with
a doctor. I didn't know what my expectations should be and
how to assert myself.
"When I was diagnosed with cancer
I was only thirty-six. It was very upsetting. A friend recommended
I read some books. One of them was Love, Medicine and, Miracles
by Bernie Siegel. Those books gave me the confidence to put
my, judgment first. They taught me that doctors are very well
trained and know their stuff, but we know our own bodies better.
We can accept what doctors tell us, but we don't have to let
them make decisions for us.
"After the first surgery, the oncologist
I went to told me immediately that my whole bladder should
have been removed. He predicted that the cancer would come
back and it did, in less than a year. I knew that this time
they would take the entire thing out, but I also knew that
there was some new surgical techniques that might let me avoid
having one of those bags on the outside of my body for the
rest of my life. At my age, I wanted to avoid that if it was
at all possible.
"This kind of operation wasn't something
my original urologist had ever done, so my primary, care physician
sent me to Dr. Bennett. He had been a pioneer in it and was
very experienced with it. When I met with him it was pretty
clear to me that he was confident that he could help me, but
he wasn't
promising miracles. He said, 'I've done many of these operations
and I have a good success rate. But I'm not God. I'm not going
to be able to give you back what God gave you. But it should
be pretty good.'
"He was very confident, which I liked,
and very scientific. And he seemed to respect the fact that
I had done my research and I had some specific questions about
his record, the possible negative outcomes, and my prognosis
for the future. We came to an understanding. I was making
the decision, and he was going to use his skills to help me
the best he possibly could.
"There was another thing that I noticed
about Dr. Bennett that was also very important. He seemed
to be very aware of who I was, that I was still fairly young,
and that this was going to affect my life in a lot of ways.
One of the things he did was arrange to have another surgeon
there for the operation so they could make the kind of repairs
that would allow me to have a
normal sex life. When they take out your bladder there's a
lot of other tissue that comes out too. He was sensitive to
my needs and I really appreciated that.
"Dr. Bennett is serious about helping
people, about using his excellent surgical skills to improve
the quality of life for his patients. I guess that's what
came through to me. He was really excited about using new
techniques, advancing the science, but it was always in order
to help people.
"I go back every six months for checkups
and everything has been fine for a long time. Recently I went
to see him and he told me about this new operation he had
done, in another country, where he reconstructed a bladder
and then was able to reconnect the urethra in a way that allowed
his patient to go to the bathroom normally, without a catheter.
He was really excited about the surgical success, his technique.
But he was more interested in the fact that he had restored
someone to normal. It was about the
person, not the medicine, and I liked that a lot."
"I learned very early in life that people live in
all kinds of ways and have all kinds of habits. I'm here to
help all of them, if I can."
Doctor
The defining moment in James Bennett's life is marked
by the wail of a siren and the sight of an ambulance rushing
to the scene of an accident. Then just twelve years old, Bennett
knew in an instant that someone in his father's logging crew
had been injured in the Georgia woods. Soon he would discover
that it was his father, and that he had been killed when a
tractor over- turned.
From the moment of his father's death, Bennett vowed to make
a life that was more stable and less dangerous than his father's.
The town's only black physician became his mentor, and soon
he was determined to become a doctor. "He was very gentle,
very understanding, and very much respected by the community,"
recalls Bennett. "No wonder I wanted to be like him."
"I believe there are scientific answers
to every question. We may not have all the answers yet, but
they are waiting to be discovered. But I think that for my
patients, it's just as important that I recognize that medicine
is an art. It's the art of being with people and understanding
them, no matter who they are and where they come from. I grew
up in rural Georgia. No one in my family had finished school
past about the eighth grade. We didn't have indoor plumbing
for a long time. So you see, I can relate to just about anyone.
This is very important in a specialty like
urology, which involves a lot of things that people don't
want to talk about. You have to make them comfortable. That's
why I look at a patient's chart before I go into the room,
but I never carry it in with me. I don't take notes while
they talk, either. I'll do that later. I don't want anything
to come between us. I want them to know I am listening very
carefully.
Obviously, urology involves a lot of male
patients, and they can be very difficult to get information
out of. I mean, most urologists will ask, 'How are you urinating?'
The guy will say, 'Fine' and that's it.
I don't settle for that. l'll give him an
example, like, 'Could you write your name in the snow when
you pee?' If he says he couldn't do that anymore, I've got
some valuable information.
I also make an effort to get their wives
in the room. That will get it out. Once I asked a man to tell
me how many times he gets up every night to urinate. He said,
'Never.' Then his wife said, 'What about that jug under the
bed?' It turned out that he had been rolling over and peeing
into this jug. I would never have thought to ask about something
like that specifically but having his wife present meant I
got the information.
None of this really takes me by surprise.
I mean, I learned very early in life that people live in all
kinds of ways and have all kinds of habits. I'm here to help
all of them, if I can.
One way you help is by giving them hope.
I never take away hope. I also give them as much concrete
information -- facts -- as I can. Some physicians might think
this overwhelms patients, but I think it does the opposite.
It makes them feel like they understand what's happening to
them. A good example of this is the patient with prostate
cancer. The absolute truth is that there is not one proven
best treatment for it. Once patients understand this, we can
discuss all the options and make choices together about what
will be done.
"Just being open about the facts helps
people a lot. This is really true with impotence. There's
some controversy over whether this is a medical problem. I
don't have any doubt that it is. How can you place a value
on a man's ability to function? Even if you say that the benefit
from helping him is solely psychological, what's wrong with
that?
"Sexuality is very important to people.
I'm not here to judge anyone, or impose my ideas on them.
But I do think that if someone wants to be sexual, to express
themselves that way, it's part of normal human functioning
and I want to help them if I can. This means that I have to
be open, too. I've learned a lot about this working with spinal
cord injury patients. A lot of what happens sexually takes
place in the brain. Even people who are paralyzed can have
sex, very enjoyably, if they learn new ways to do it.
"The ability to be open with people,
to understand the importance of sexuality, and my interest
in the science is a pretty good combination. I think other
doctors know my reputation. It's probably why I got the call
from the trauma surgeon when one of my patients was in a terrible
motor vehicle accident. He had actually had his penis almost
burned off. He was not even twenty years old.
"Well, I talked to him for a
long time. I acknowledged the trauma he had experienced, but
I also gave him hope. We developed a strategy to reconstruct
it for him, using what was left as a start. He now has full
function, and he has a chance at leading a normal life. I
think our relationship, and the confidence we developed in
each other, was a big part of it. It wasn't the surgical success
that was the most important thing. It was that we helped that
young man stay whole as a person with a future."
James Bennett, M.D., 44, urologist, Atlanta, Georgia
Linda Richardson, 46, insurance executive, Atlanta, Georgia
Reprinted from The
Best Medicine, St. Martins Press 1999.
Photo of Dr. Pelofsky with student Natalie Hartman. Permission
granted by William Vazquez Photography.
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